Agenda item

To receive an update on the priorities and progress of the Dying Well strand of the Hampshire Health and Wellbeing Strategy.

The Board received a report and supporting presentation from representatives of Frimley Integrated Care System (ICS) and Hampshire and Isle of Wight ICS regarding work being undertaken in support of the Joint Health and Wellbeing Strategy Theme ‘Dying Well’ (see Item 7 in the Minute Book).

The Board heard:

·         A Palliative and End of Life Care Group was in place for both the Frimley ICS and the Hampshire & Isle of Wight ICS and links between the two had been established to share learning

·         A number of key pieces of work were under development, with a number of initiatives implemented, as detailed within the presentation

·         Hospice Collaboratives had been established in both areas, at the early stages of development.

·         Frimley had held ‘death fairs’ which received positive feedback and increased the confidence of attendees in talking about death. HIOW ICS have sought learning from this process and have developed a BAME pilot model within the PSEH patch with plans to develop a broader programme of death fairs across the ICS

·         It was important to encourage conversations at the early stages about death and to ensure these discussions were held more broadly to include the patient, carers, family members etc.

Board Members commented:

·         The H&IOW Fire and Rescue Service representative queried the role of employers in supporting employees who had a terminal diagnosis

·         The Director of Public Health highlighted support to those that are bereaved especially regarding mental health, and that inequality may influence who isn’t ‘dying well’

·         That a new Board sponsor was needed for this theme

·         Ways to measure improvements were recognised as under development pending the work with the SE Regional team around an PEOLC Dashboard e.g. increasing the number of people on an End of Life care pathway

·         The Acute Trusts representative highlighted that the Winchester Hospice was now open, and that it would be helpful to see a map of service provision such as hospices to help identify where there may be gaps in coverage. This links with the existing mapping work being completed by the Hospice Collaboratives.

·         The Vice Chairman suggested encouraging ‘anticipatory care plans’ when frailty was identified, so this took place earlier than at the point of a hospital admission

RESOLVED:

The Health and Wellbeing Board:

1. Support the current approach and ongoing development of ICS wide End of Life Care Board/Steering Group, enabling end of life care specialists to come together across the patch to drive, develop and enhance end of life care locally. To enable appropriate representation from health, social care and voluntary organisations.

2. Support the developing partnership between Frimley ICS and HIOW ICS as we work together to share learning in the development of end of life care locally.

3. Acknowledge and agree the ICS priorities and deliverables that have been identified to date around end of life care, noting that the deliverables will be subject to regular review.

4. Agree the outlined approach specifically related to the following workstreams:

·         End of Life Interoperability

To support the multiple approaches taken across ICS to tackle interoperability, noting due to the complexity of the challenge that successful and effective engagement and delivery requires sufficient planning and development.

·         End of Life Care Dashboard

To support plans to engage with the South East Regional work underway to review and develop an end of life care dashboard. Noting that whilst this will result in delays in visibility of ICS wide data, a regional approach will ensure consistency and support to tackle complex issues.

To support discussions with commissioning bodies to outline expectations, supported by Public Health data expertise.